{My Delayed Fairytale} Stories about life, love and Lily.

Friday, March 16, 2012

My Apologies...

I haven't been online all that much this week. We have visitors and I have been busy entertaining while maintaining a busy life as of late. I haven't had much time to post anything because my mind is in a bizillion different directions, and when that happens, I can't write. I think it will all die down by next Monday, maybe sooner, like Sunday. I have a few things that I think are important to discuss and share. I am hoping to steal some time to be able to write those thoughts down and then onto my blog.

I will say, that I am so glad that I started this blog. I was so hesitant in the beginning, because regardless of it being a small glimpse into my life, I'm still out there... and that can be a little scary. What I have found though, is a wonderful community of moms that are dealing with difficulties, stresses and their beautiful lives. Some moms have children who have special needs, like Lily. Other mother's don't. However we all share a commonality because we are just that, moms. Aren't we so lucky?

I am grateful for each of you. I am grateful that you all stop in from time to time to read about my adventures, my thoughts and about my love for my family. I love that you are interested in Lily and her progress. I love that you feel for me when I write about how I am dealing with Lily's setbacks. Sometimes I deal just fine with it, and then other times, the sadness cuts me to the core.

Before I go, I have some pictures from this week to share of my little punkin' and her little pup. Still no name. What is the matter with me? I hope they make you smile, because that is what they do for me.

Lily and her little guardian.

Lily hangin' at Primary Children's Hospital.

In the parking lot at the hospital.
She is a little trooper.

Our unsuccessful attempt at walking the dog.
Before I knew it, he was up on the stroller
saying, "I don't mind if I do."

Me and my little one stealing a moment
together on our front porch.
I feel so lucky to have her.

I hope you all had a wonderful and productive week. I feel satisfied that I made the most of every moment, including just spending time with little Lil. Tonight, as I was getting her ready for bed, she reached over and grabbed my hand and then looked lovingly into my eyes. I knew that she was letting me know how much she loves me. She is so special.

Come back soon!

About Kym and her Lilybean:

Hi! I'm Kym and I didn't become a mother until I was 41 (and a half)! Up until that point, I worked in marketing, mainly throwing huge events for a large tech company. My job was fun! But after I got married to my husband, Martin, we had our little girl, Lily and I made the decision to stay at home with her. It was always my dream to have a child and to be a mother. I knew it was going to be hard, but I didn't know how much I would stumble, laugh, and learn along the way. It's A LOT of work! And way harder than catching a red-eye to some hot spot to throw a party.

While the doctors still have yet to figure out what Lily has, we know she has hypotonia. Hypotonia is better known as "floppy baby syndrome," meaning her muscles aren't fully developed. Hypotonia makes it hard for her to sit up, crawl, talk, and walk. In fact, she has yet to do the last three, so she is severely delayed.

I hope this blog gives you a little laughter and hope while reading the perils of a middle-aged, first-time mom struggling to raise a child with a disability. More importantly, I hope it helps you to get to know a little more about Lily, her condition, and what and how I learn from her daily. We might be moving at a slower pace than most, but this is my delayed fairytale.