{My Delayed Fairytale} Stories about life, love and Lily.

Tuesday, July 31, 2012

Wrapping Up Another Memory

I am finally up and running after getting home from Lake Powell... again. There were more sheets to wash and more towels to dry. There was definitely a lot more "stuff" to put away. After a week at "Powell", my home looks like the epicenter of a catastrophic earthquake. It always takes me a good week to come out from under the rubble.

Now, Powell seems like a distant memory that was filled with wonderful family, lots of laughter and stories that will last for decades. I am so grateful to have a wonderful family on both sides of Lily's family tree. She is so lucky to have cousins and relatives who sing to her, play with her and love her. I AM SO LUCKY.

Now that our family is all tucked away into their different corners on the east coast (e.g., Boston, Georgia and New Jersey), I can't help but miss them and wish that we all could have had just one more week together... or at least a longer goodbye at the marina where we all parted. Family is really such a wonderful thing to have in mine and Martin's life. We... I cherish it above everything else.

So, until next November (You think I'm going to pass up another Macy's Day Parade in NYC?) where we will all meet up again and drown ourselves in turkey gravy and those oh so delightful yams. Until then, I will think of our trip to Lake Powell and smile... and laugh. Especially when I think of my sister-in-law, Katy, screaming unspeakable words as she jumped off a cliff near our houseboat. Apparently Katy will jump off a cliff if provoked, but not without telling each of us how she feels about us on her way down. That will be filed away as a "priceless" moment for the Frey family books.

*****************.

Before I leave you this evening, below is a photo that Martin's cousin, Peter, caught on his camera of our houseboat in the canyon. Most mornings look like this. I have to pinch myself every time knowing that I get to wake up to so much beauty.

About Kym and her Lilybean:

Hi! I'm Kym and I didn't become a mother until I was 41 (and a half)! Up until that point, I worked in marketing, mainly throwing huge events for a large tech company. My job was fun! But after I got married to my husband, Martin, we had our little girl, Lily and I made the decision to stay at home with her. It was always my dream to have a child and to be a mother. I knew it was going to be hard, but I didn't know how much I would stumble, laugh, and learn along the way. It's A LOT of work! And way harder than catching a red-eye to some hot spot to throw a party.

While the doctors still have yet to figure out what Lily has, we know she has hypotonia. Hypotonia is better known as "floppy baby syndrome," meaning her muscles aren't fully developed. Hypotonia makes it hard for her to sit up, crawl, talk, and walk. In fact, she has yet to do the last three, so she is severely delayed.

I hope this blog gives you a little laughter and hope while reading the perils of a middle-aged, first-time mom struggling to raise a child with a disability. More importantly, I hope it helps you to get to know a little more about Lily, her condition, and what and how I learn from her daily. We might be moving at a slower pace than most, but this is my delayed fairytale.