{My Delayed Fairytale} Stories about life, love and Lily.

Sunday, June 24, 2012

Excuses, Excuses

When I was a kid, my piano teacher used to say to me every week at my lesson, "Kym, you have more talent in your little pinky, yet you always have an excuse as to why you haven't practiced." Truth was, I was a pretty busy kid. However, I did come up with some pretty fabulous excuses.

Honestly, my excuse as to why I haven't blogged for awhile is pretty lame. I have been at Lake Powell for the last week playing with my friends and family on our houseboat. The trip deserves it's own post. So, I'll wait until I can compose myself in a day or so and actually share photos of the majesty and beauty of Lake Powell.

Until then, I'll be doing laundry. This is the price that I have to pay every time we spend a week in one of the most beautiful places in the US. It's worth it, even though "laundry" is the first thing I think of anytime someone mentions Lake Powell to me.

Please tell me that you feel my pain?

About Kym and her Lilybean:

Hi! I'm Kym and I didn't become a mother until I was 41 (and a half)! Up until that point, I worked in marketing, mainly throwing huge events for a large tech company. My job was fun! But after I got married to my husband, Martin, we had our little girl, Lily and I made the decision to stay at home with her. It was always my dream to have a child and to be a mother. I knew it was going to be hard, but I didn't know how much I would stumble, laugh, and learn along the way. It's A LOT of work! And way harder than catching a red-eye to some hot spot to throw a party.

While the doctors still have yet to figure out what Lily has, we know she has hypotonia. Hypotonia is better known as "floppy baby syndrome," meaning her muscles aren't fully developed. Hypotonia makes it hard for her to sit up, crawl, talk, and walk. In fact, she has yet to do the last three, so she is severely delayed.

I hope this blog gives you a little laughter and hope while reading the perils of a middle-aged, first-time mom struggling to raise a child with a disability. More importantly, I hope it helps you to get to know a little more about Lily, her condition, and what and how I learn from her daily. We might be moving at a slower pace than most, but this is my delayed fairytale.