{My Delayed Fairytale} Stories about life, love and Lily.

Wednesday, September 19, 2012

Back to Normal Life

So, I'm not a great blogger when I travel...

I really wanted to write about each city while we were over in Europe. The truth is, we saw 61 cities and plowed through 13 countries--so I was a little more than tired at the end of each day to form a sentence, let alone a snappy post.

Even though I am home now, I'm still going to write about each of my adventures to these beautiful cities. I am going to buckle down this next week and try and write about some of my favorite places and experiences so that I never forget about this beautiful part of the world and the amazing time I had with Martin and Lily. Honestly, it was all so perfect that it's going to be hard to not post every single photo that I took while I was there.

This week I have been getting back into the groove of being responsible; like actually preparing meals, doing laundry and oh, getting little Miss Lily Faith back to school. Which leads to the photo I took of Lily's first day of school.

I love this photo because the morning she started back I kept saying to her, "Lily, you get to go to school today and you get to ride the bus!" I wondered if she knew what I was even talking about or if she would even remember anything about school since our summer was long and I'm never sure what sticks and stays in this little lady's head. I knew the clincher would be if she recognized the school bus when it came to pick her up and take her back to Miss Mary, her teacher.

I loaded Lily up in her wheelchair and rolled her out to the end of our driveway to wait for the bus to come. Just as I was setting up the perfect light and getting Lily settled, the bus came 5 minutes earlier than I had planned. Lily's eyes caught sight of the school bus immediately, and all of a sudden she let out an audible squeal when the bus pulled up to the curb. I was so amazed at seeing her reaction that I forgot to take the camera out and document her delight. When I did remember, I fumbled and hurried but was only able to take one picture before I had to load her onto the bus.

I think this photo pretty much sums up her excitement.

About Kym and her Lilybean:

Hi! I'm Kym and I didn't become a mother until I was 41 (and a half)! Up until that point, I worked in marketing, mainly throwing huge events for a large tech company. My job was fun! But after I got married to my husband, Martin, we had our little girl, Lily and I made the decision to stay at home with her. It was always my dream to have a child and to be a mother. I knew it was going to be hard, but I didn't know how much I would stumble, laugh, and learn along the way. It's A LOT of work! And way harder than catching a red-eye to some hot spot to throw a party.

While the doctors still have yet to figure out what Lily has, we know she has hypotonia. Hypotonia is better known as "floppy baby syndrome," meaning her muscles aren't fully developed. Hypotonia makes it hard for her to sit up, crawl, talk, and walk. In fact, she has yet to do the last three, so she is severely delayed.

I hope this blog gives you a little laughter and hope while reading the perils of a middle-aged, first-time mom struggling to raise a child with a disability. More importantly, I hope it helps you to get to know a little more about Lily, her condition, and what and how I learn from her daily. We might be moving at a slower pace than most, but this is my delayed fairytale.